To Be The Best Caregiver I Can Be

November is National Family Caregivers Month. My fifteen-year-old son Tate has autism and my youngest daughter has special needs as well. Currently, I am also helping to care for my elderly parents. I was asked to write a post about being a caregiver. I took a stab at it and read it back to myself. I had written an essay that sounded like I was having a pity party about the all the time my kids’ disabilities have stolen from me. So, I tried again. The second attempt was an essay comparing the amount of time and energy I spent raising my typically developing children to the amount of time and energy it is taking to raise my special needs children. It really did not reflect the way I feel about being a caregiver at all. My third attempt was also sent to the trash bin.

It occurred to me then: I had been trying to write about the hardships of being a caregiver. There is no doubt it is hard. Everyone knows that. But what good caregiver dwells on all the negatives involved? Did my own parents keep track of all the times I woke them at night? Or vomited in my bed? Did they begrudge the money they spent on my education? Of course not. Good parents are not keeping score of all the difficulties they have with their child, or the sacrifices they make.

A good caregiver is a good one because he does the things he needs to do willingly. So I made a list. I made a list of the things that help me to be the best caregiver I can be in hopes that it might encourage others to be the best caregiver they can be.  

1 Laugh. I laugh when things are funny, and they often are. There have been times I have laughed to keep from crying. Remember to laugh. A sense of humor can make all the difference.

2 Smile. It’s hard not to be happy when I have a smile on my face, and it is hard to become angry or be unkind when I am smiling. A smile can totally change another person's response too. 

3 Sing. Just like smiling, it is so hard to be anything but happy when I am singing. Music is such a valuable tool. 

4 Cry. If laughing, smiling, and singing are not going to work today, a good cry might. But if you find yourself crying often and unable to cope, talk to a professional. 

5 Share. Find someone who will listen. Online support groups can be helpful when no one is physically close. I blog and have built my own sort of support group of followers who help me far more than I help them. 

6 Find a cheerleader. I have many cheerleaders. Some of them are part of my physical family and some are part of my church family. Some are online friends. Do not go to discouragers for advice or for cheering up. Do not go to the support groups that mostly talk about the hardships and the negatives when you are in need of encouragement. Surround yourself with positive people. 

7 Set goals, but set reasonable ones. It is helpful to have short-term goals. Some of my goals are very small and easily achieved in a day's time, while others might take a few days. It might even help to write goals down and be able to cross them off as they are completed.

8 Prepare yourself. It is much easier to prevent problems before they develop, than to fix them after they occur. I try to anticipate the things that might go wrong, and put a plan in place for the “just in cases”. When it is time for appointments or meetings, go prepared. Make and take a list of questions and concerns.

9 Control yourself. I cannot control others, but I can control myself and how I react to others. Remember that you are responsible for you.  Do not make matters worse by speaking in anger, or saying something you may later regret. There will be times when those around you who you had hoped would help, will not. There may be times when you feel resentful, if not because your child is disabled or your elderly parents are sick, then because the ones you thought you could count on to help, do not. But the kids still have to be fed, the sick still need to be looked after, and the trash still needs hauled out to the curb. It is up to you. You cannot control those around you, but you can control yourself.

10 Dismiss yourself. Sometimes I need a few minutes to regroup. When everything around you seems to be falling apart, take a deep breath, count to ten, say a prayer, bite your tongue, or walk away.

11 Forgive yourself. I make mistakes. I make a huge mess of things sometimes, and you will too. Nobody is perfect.  ♫ Let it go. Let it go. ♫  

12 Do not lie to yourself. Face your truths. Dwelling on the things you wish you could change will only make you miserable. Also, pretending problems are not really there does not work. Roll up your sleeves and do what you can to make things better. The grass is not really greener next door. That neighbor or friend who seems to have the perfect life with the perfect kids and a pocket full of money, has his own struggles too. 

13 Reward yourself. Whether it is something small like a soda, or something more substantial like a night out, I find that it helps if I have something tangible to look forward to at the end of the day or at the end of the week. 

I'm not an expert. I have made plenty of mistakes, but these are the things that help me to do what I do best. Perhaps these things could help you to be the best caregiver you can be too. 

Writing this has helped me to remember that being a caregiver is a privilege and a worthwhile and fulfilling job.

If you liked this post, you might also like this one...  Stepping Up To The Challenge

Tate's a Freshman, Part 2

My son Tate has autism. Tate is a freshman in High School this year, and is just beginning the second quarter. At this point, his teachers have gotten to know him and his quirks, his abilities and his inabilities, some of his anxieties and obsessions, and just how much fun he is to have around.

This is the second in a series of posts about Tate's freshman year of High School. You might like to start with the first. If you haven't already seen it, click here: Transitioning to High School with Autism

Last week I attended parent/teacher conferences. I always go to meetings with new teachers with just a little trepidation, hoping they “get” what autism is and how to best communicate with Tate. 

I got to hear some really fun stories about how Tate is settling in and how his teachers this year have come to enjoy him. And I got to hear the other side of a few of the things Tate has come home and told me about. 

One of my favorite stories was about World History class. Tate really likes his World History class. Or at least he likes the projector that hangs from the ceiling.

And Tate is excelling in math this year.

Although Tate’s math teacher had nice things to say about him, Tate is unsure she really knows much about math at all.

The math teacher is not the only teacher who has given Tate new notions to ponder.

This is the first year Tate has had no organized lunch buddy program. He is doing well on his own. One of the teachers he had in Junior High sat with him while he ate lunch recently.  

Lunch was not the only concern I had about Tate being in High School. I worried about his ability to maneuver through the crowd. Choreographing his movements to those around him is difficult for Tate. They tell me he is colliding with others less frequently now. Tate's size is intimidating enough that he will likely never be hurt, but I do worry about the other guys.

Not many kids like homework, and Tate is no exception. The name “homework” itself annoys him. If it is schoolwork, then it should stay at school. It baffles Tate that schoolwork can be brought home and relabeled as homework. He does not like his two worlds to mix.

If you like reading about Tate, follow us on Facebook at Quirks and Chaos.

What is a bully?

My fifteen-year-old son, Tate, is a freshman in High School. Tate has autism. To my knowledge Tate has never had to deal with peer who is a bully. I have a theory or two about the why(s) behind that and you can read about all of that here: A Successful Buddy Program

It is hard for some to believe that Tate does not have a problem with bullies. Many people have told me that bullying is just something their children with autism have to live with. I have had a few people suggest to me that Tate is likely being bullied for his differences, but is either unable to recognize it himself and complain, or that I am just too out-of-touch to know. It really is hard for some people to understand that we seem to have done what is considered "the impossible." There simply are no bullies in Tate's life.

Because the month of October is bullying prevention month, I decided to talk to my two special needs kids about bullying. I asked Tate if he knew what a bully is. He said, "a bully is someone who is mean to kids." I walked away and came back a bit later to ask him to go a bit more into depth about what a bully is. This time he said, "a bully picks on kids." So I asked him what a bully looks like. He told me a bully looks like a big kid who is really mean. I asked him if a little kid could ever be a bully and he said, "yes." I asked him if a grown up could be a bully. He again answered, "yes." So I asked him if he knew any bullies. He exclaimed, "no!" 

I wanted to explain some things about bullying to Tate and his younger sister, and that is best done with visuals for my two literal kids. The following is what I came up with... 

Let me know if I got it right. Are there things here you would change or add? Find me on Facebook at Quirks and Chaos. 

If you give a mom an Autism Speaks gift card...

It's no secret that a large majority of my followers are following because they saw one of my posts on the Autism Speaks site. So I do not have to explain to you readers who they are and what they do. 

Autism Speaks has been really good to me and to Tate. Most recently, a representative of the online shop (http://bit.ly/2dOLZAy) sent us some merchandise to review. Knowing Tate as they do, there was a hoodie in the box. If you have followed us long at all you will know Tate puts a hoodie on in September and doesn't take it off until the end of May. He is a connoisseur of hoodies. He loved the Autism Speaks hoodie. It just so happened it came the evening before his birthday and he wore it on his birthday, proudly. 

I was asked to choose some things to review or blog about and was excited. I was excited, but it still took me two or three days to look at everything the shop had to offer. It was because I kept getting called away. The kids needed me. The phone rang. I had appointments. And one thing kept leading to another. 

And because of my love of the picture book series by Laura Numeroff, I was reminded of the mouse who is so distracted by everything around him, as I was trying to place that order! I decided to cartoon what it is like for a busy mom to shop online sometimes. 

Use this link to go to the Autism Speaks shop. If you place an order or buy a loved one a gift card, let them know that Lisa and Tate from Quirks and Chaos sent you.  http://bit.ly/2dOLZAy

And I'd love to hear what you liked best in the shop!