No Regrets: The Things I Did Right

I have seventy-five blog posts up now. Most are connected to autism or Fetal Alcohol Syndrome. A few have nothing to do with either. In December I wrote a blog post called “Regrets” and to-date it is my most read post. I suppose that should tell me something. You can read it here: http://quirks-and-chaos.blogspot.com/2013/12/regrets.html This post is a follow-up to that one, a sort of contrast. In the former post I spoke of the things I would do differently. The following are some of the things I would do exactly the same.

One of the things I do NOT regret is that my children have often heard, “We will have to ask Daddy”. My kids have grown up knowing that Dad was “in charge.” If I wanted to spend a large sum of money then I had to okay it with their dad. If the kids wanted to go somewhere I was unsure of, we waited to ask their Dad.  When occasionally one of the kids asked me “not to tell Daddy” it wasn’t going to happen. I share everything with their daddy. This, I do not regret. Candace Cameron-Bure wrote a blog post recently that rocked Hollywood. She said she was submissive to her husband and explained why. The media tried to make Candace look ridiculous over this. Being in submission to your husband is not something to be embarrassed about.

I also do not regret waiting three years after we were married to start our family. Shawn insisted that we needed to have some time alone before we added kids. It was a really good idea. It gave us so much time to plan and talk about what we each expected and hoped for, as well as save a down payment for a home. The first three years I worked and we saved my paycheck. We used Shawn’s paycheck to live. We always planned for me to be a stay-at-home-mom and it was much easier to do with the house already purchased and a budget set in place. Shawn has worked two jobs most of our married life and I have done some daycare off and on for many years so that I did not have to work outside the home. It is not possible for every mother to stay home with her children and not every family desires to structure their family this way. Some of the best moms I know work full time. I do not believe it is wrong for a mother to have a career but it was not for me and I have no regrets.

I do not regret that I insisted my children do chores and learn how to clean the house. I do not regret that I taught them how to load and unload a dishwasher, sort laundry and start the washing machine, run the vacuum, mop a floor, and clean a toilet. I do not regret that they were making cookies and other “messes” in the kitchen at a fairly young age. I do not regret that they have all had to mow lots of grass in the summer and rake lots of leaves in the fall. I do not regret that my sons have gone to work with their Dad and learned how to use tools. I do not regret that my older children had to take care of their younger siblings occasionally and even help them with their homework. I have no regrets about having a large family and doing without a few “extras” because of it.

I do not regret showing my children what love looks like. When I was growing up I had wonderful parents who showed affection to each other often. As a small child I remember squeezing in-between my folks often when they were sitting close together. As an older child I remember saying, “gross” when they kissed in front of me. There was never a doubt in my mind that my parents loved each other very much. My children have grown up seeing affectionate parents too. Of course, we are not inappropriate, but often show our love for each other. We hold hands, kiss, give hugs, sit close, and say sweet things to each other in front of our children. Until recently, it never occurred to me that other parents are not doing this. Our kids are telling us differently. Many of their friends have reported to them that they have never seen their parents show affection to each other. This astonishes me. I will never regret teaching our children what a strong marriage looks like. I love that my children know that I am “crazy in love” with their dad. 

Bible Camp!!

I do not regret all the times I sent my kids to a church related activity when they wanted to skip it. A few years ago I listened to a man lamenting about his young adult son who had stopped coming to worship services. He was wishing there was something he could do. I kept thinking the whole time: “the time for ‘doing something’ was a long time ago.” I was remembering all the Bible camps and youth rallies the boy had been invited to. He did not “like” to go to those things; he did not “want” to go to those things; so his parents did not SEND him to those things. His parents did not neglect his physical health, his academic education, his sports practices, or his hygiene. Why then did they let him make his own choices when it came to those spiritual activities? Not all of my children have “liked” the rustic Bible camps we have taken them to but they went anyway because their parents chose for them to go. They grew spiritually because of their experiences there. I can also remember how “inconvenient” it was for their dad to set aside a Saturday to take our oldest to a youth rally in Kansas City. He did it anyway. The Bible camp the kids attend faithfully every summer is at the most inconvenient time for their dad’s HVAC business but he takes a week off and goes with them. It sometimes comes at the risk of losing customers. He’s done this since our oldest was nine years old. I cannot count the number of gospel meetings we’ve been to or hosted at our own congregation. These things were very important for the training of our children. We do not regret all the time, travel, and money involved in this! This is something we did right. Young parents: Do not neglect your children’s spiritual health. Look ahead and picture them as strong Christian adults and think about what it will take to make that happen! Take advantage of Christian camps, area-wide singings, gospel meetings, and youth rallies! Your child may meet their best friends there.

I do not regret all the school events and sporting events we missed to attend Wednesday evening Bible class. The message we sent our children every time we missed a school band concert, vocal concert, or school sporting event was that God is more important than anything else. Every time our kids had to explain to the director of the school play or their coach that they would not be available to practice or perform on Sundays or Wednesday evenings, helped them to realize what kind of a commitment it takes to be a Christian. 

I do not regret all the school events we said, "no" too. We told our children from a very young age they would never be attending school dances. The girls would never be going out for cheerleading or any other activity that would require them to dress immodestly. Because we told them BEFORE those opportunities arose, the kids already knew they did not even need to ask. Of course many of their friends thought they were being so mistreated because they did not attend dances or go to the school proms. I don't think my kids missed out on much and I don't think they even believed they were missing out on much by the time these things came around. Children need to learn how to live in the world without being a part of the world. It can be done. 

2002 Visit

I do not regret insisting our children attend a Christian University, the most conservative Christian University we could find. We began to tell our children when they were toddlers that they would be attending this University. We took them there as young teens and they became familiar with the campus. We did not let them choose where they were going if we were going to pay the tuition. What are our reasons? We want our children to spend their first years away from home under the guidance of Christians, surrounded by like-minded peers. We want them to be at a place where the majority of students and all their teachers attend the Church of Christ. We want our children to be at a university where their classes begin with a prayer, where they begin their school day with the singing of hymns and a devotional in a worship setting. We want them to be able to go to their professors with religious questions as well as academic questions and get the correct answers. We want them to be in a place where they are privileged to have teachers like Dan Winkler and Loy Mitchell. 

2012 Graduate

 We want them to be at a place where temptations are fewer (not non-existent, but fewer.) I know they eventually have to be out in the “real” world (but better at 22 than at 18.) I know the tuition is double or triple that of a state school or a junior college. I know that we will potentially be repaying student loans when we are also paying for our nursing home (HA). This is not a post judging what YOU do or have done but a post about the things I do NOT regret verses the things from an earlier post that I DO regret.  I am not trying to bash state schools or upset anyone and hope that I do not. I have many relatives and Christian friends whose children are at State Universities.

These are some of the things I do NOT regret. These are the things I believe we have done right so far. Thanks for reading. You might also like to read: Don't Blink

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Heart Attacks and Loose Teeth

Sydney has become more aware of her peers and their opinions this year.  Because of her lack of impulse control and her inability to determine right from wrong due to the Fetal Alcohol Syndrome (FAS), it can be pretty concerning. I always request that Sydney be exposed to positive peer models and the amount of time spent with children who have behavioral issues be minimized, but in a public school setting this is not always possible. Sydney has been acquiring lots of interesting knowledge this year to say the least. The school year began with her coming home with gravel in her pockets. She believed those ordinary rocks to be valuable.  It seems a boy on the playground told her they were fossils because they had little bits of color in them. When I asked what they were fossils of she explained the boy claimed they were the knee bones of Indians. That was the first week of school so I knew from the start it was going to be a very exciting school year. The same boy has given her a lot of “facts” about dinosaurs, insects, and weather that are not exactly accurate too.  I’m not sure if he believes the stuff he tells her or if he just makes it up as he goes along, silently laughing as my gullible daughter soaks it all up.

The most recent bit of misinformation that Sydney believes to be true is something she learned from a little girl in her math group. Apparently, a person can die of a heart attack if they are exposed to too much math in one sitting. This little girl claims her own dearly departed grandmother suffered “death by multiplication tables”. I’m having a hard time convincing Sydney that it couldn’t happen. 

Another tooth gone

The same sweet little darling classmate lost a tooth last week. Sydney could not be outdone. She came home and insisted she needed to take out a tooth. Unfortunately, there were no loose teeth in Sydney’s mouth. She wanted me to help her get one of her front teeth out and I explained it was a permanent tooth. She said, “I don’t mind. I don’t want that one.” It took two days of prodding and wiggling, but she found a baby tooth with just a little play in it and she got it out. It still had quite a bit of root on it and left a large hole but she was thrilled. She’d lost a tooth just like her friend. The reason she has so few teeth left to lose? This actually wasn’t the first time something like this had happened. In kindergarten and first grade the teachers had charts for the students to add a sticker to if they lost a tooth. Sydney loved the attention that came with putting a sticker on the chart so much she was willing to suffer the pain of pulling teeth that really were not yet ready to be pulled. The alcohol Sydney’s birth mother consumed while pregnant really did a number on Sydney’s threshold of pain.

Sydney has come home with some very entertaining stories lately. With help from her teacher, I’ve been able to unravel a few mysteries. Sometimes Sydney’s stories are like onions and I have to peel back a few layers to really get a good picture. Sydney and a friend were disciplined at school a couple of weeks ago for name calling in the classroom. The two girls had been picking on some of the boys. Sydney’s teacher wrote a note on the weekly calendar that the students bring home each week to let me know that Sydney had been in trouble. I never saw the note. When the teacher looked for my reply the next day, she saw it had been erased! I spoke very seriously with Sydney about it. Sydney claimed she did not erase the note. Her friend and partner in crime did it. I am pretty sure there is a “Leave it to Beaver” episode in this story somewhere.

Because of the name-calling incident, Sydney’s teacher decided the two girls would be better off sitting further apart and she moved their desks. Sydney confided to me right after school that day that the two girls had a plan to right “the injustice” of such a “cruel” punishment. They were going to DEMAND a meeting with the teacher the next morning and insist she allow them to be reunited. Sometimes it is very hard to keep a straight face when Sydney is telling me these things. I find third grade drama extremely funny. I could hardly wait to hear the next installment when I picked her up the following day. I had emailed the teacher to warn her of the coup attempt so she was ready for them. I so wish I could have been a fly on the wall during the girls’ plea for justice. Sydney never did understand why their demands were not met.

 

I’ve been overjoyed this school year because Sydney is making friends. Last year she was shunned by the girls in her class and bullied by the boys. This year she has had fewer of those sad sagas and is a lot happier. I suppose it could partially be the personalities of the different students in her class this year but I also see her maturing. She still has all the same disabilities but she is gaining some “street smarts” that she really needed. I know public school takes a mom’s innocent little five year old, exposes them to all kinds of words and ideas that they would be better off not knowing. I’m not really glad that Sydney or any of my other kids have ever come home to ask me what some filthy word meant. I’m not really happy that Sydney or any of my other kids have ever come home to tell me a filthy joke that they did not understand the meaning of. Those kinds of things I WISH I could have sheltered all my kids from.  However, by age ten, Sydney should have caught on by now that others do not always have her best interest at heart and that sometimes following other people blindly will get her into trouble. The FAS left her with so little impulse control, she has a difficult time thinking before she acts. If a classmate suggests an activity (even one she has been warned about), she does not (cannot) stop and consider the consequences usually. I believe she is beginning to develop some self-control that we have not seen before. So, I suppose when I count my blessings I should count her peers (even the ones with questionable intentions) as a blessing to us.

Here's a similar post if you want another great post: "Just Another Day in Paradise."

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What brought you here?

This past month we visited a pediatric psychologist at Children’s Mercy to get a diagnosis for Tate that will be accurate under the new guidelines that are being used in the world of autism. In recent years, the American Psychological Association (APA) used a tool called the DSM-IV-TR to diagnose Autism Spectrum Disorders (ASDs). ASDs included Autism, Asperger’s Syndrome and pervasive development disorder-not otherwise specified (PDD-NOS). In May 2013 the DSM-5 was introduced as the new diagnostic tool. This manual has eliminated the three subgroups. Tate’s doctors have told us that the word Asperger’s will soon be obsolete. It is my understanding that the new diagnosis for a child with autism will be Level 1, 2, or 3, with 1 being the highest functioning and 3 being the lowest.  Tate’s new diagnosis is Autism Level 2.  For more information about the new terminology and the new criteria I found this article helpful: http://www.autismspeaks.org/what-autism/diagnosis/dsm-5-diagnostic-criteria

Some think the motive behind the new criteria is to make it harder to get an autism diagnosis, thus bringing the alarming numbers down. I do not really have an opinion on the reasoning behind the change. I do hope that the new criteria will not harm the autism community and prevent children who need support from gaining it. 

In order to get the evaluation and the new diagnosis, the psychologist had to spend several hours with Tate. He gave her a pretty accurate picture of himself from the introduction. He asked, “Do you know what brought us here?” The psychologist assumed he was asking her to reveal the purpose of our visit and she said, “What do you think brought you here?”  He answered, “a truck.”  It got better (or worse depending on how you look at it).  While testing with Tate, she needed him to define words. When asked to explain what a car is for, Tate said, "A car is something you drive around in because humans are loosing the ability to walk." She asked him about posture and he started speaking gibberish. She asked him what he was doing and he said he was speaking Spanish, also called posture. When asked what an American is, Tate said, “When you are from America, you laugh a lot and smile and play in the sunshine. You also speak English or Spanish." So, he got that right! Ha. The doctor showed Tate a lot of faces that illustrated a lot of emotions. Tate failed to identify almost all of them correctly. The doctor asked him what a smile and a frown had in common and he said, “Both faces are round.” There were many, many more gaffes and blunders over the two days of testing. Some made us laugh and some made me want to cry.

Age 3

After all the testing, Shawn and I met with the doctor alone. The results and the recommendations from the doctor were both helpful and discouraging.  Going into Tate’s appointment for his diagnosis at age 3, and again at age 12, we had our eyes wide open. We already knew both times that he had autism and we had a long, hard road ahead of us. The difference between the first time when we heard the diagnosis “PDD-NOS” and the second time when we heard “Autism Level 2”, was that we had a lot of hope at age 3 that we no longer have nine years later. Originally, we fell hook, line, and sinker, for the idea that kids can “recover” from autism. We spent the thousands of dollars it took to get best-practice, early intervention. We spent the hours and hours it took to get Tate kindergarten-ready academically. We even made progress with a lot of social skills. We worked so hard and saw a lot of growth but we didn’t get the “recovery” that we had hoped for. I am still one hundred percent for early intervention and believe Tate is much less handicapped than he would have been without the hard work. Perhaps if we had not hoped for recovery we would not have worked so hard then. Perhaps if we had not hoped for recovery the reality would not hurt so badly now. I have learned not to dwell on “what ifs.”   

Regardless of what we call Tate’s disability, it is still the same disability and he is still the same kid. Tate still struggles in all the same areas. Tate still needs the same supports he did before the new diagnosis. We continue to make progress and I see it come in leaps and bounds sometimes. 

Age 12

Over the Christmas break, Tate’s oldest sibling, Titus, was home for a visit. He is sometimes able to explain things to Tate that I have been unable to. I told Titus we were working on teaching Tate about sarcasm. I know what you are thinking… Why would a Mom want to teach her child the art of sarcasm? Why would any mother in her right mind go out of her way to try and help her kid become sarcastic? Well, in the first place it is age appropriate. In the second place it is much like figurative language and joking that is over Tate’s head, causing him to miss out on so much of the conversation around him. Thirdly, we are constantly trying to make Tate see that not EVERYTHING has a concrete, literal meaning. Sarcasm almost always means exactly the opposite of the words that are actually used. So, Titus gave it a shot. He gave Tate a definition of sarcasm and some examples. Then we asked Tate to try. Tate looked confused. I said, “Tate, look at Sydney’s hair. It is a mess. What could you say about Sydney’s hair that would be sarcastic?” Tate responded, “Sydney, your hair is sarcastic.” Lesson fail!! I’ve been hammering away at it ever since though and pointing out sarcasm whenever we use it or hear it. Sunday, we sang a really short hymn in worship and Tate leaned over and whispered, “THAT was a long song.” Then he looked at me and smiled. Now, normally would I praise one of my children for saying something sarcastic about a worship song? Would I ordinarily get excited about whispering and joking during worship? NO! I would not. BUT… I almost came out of my seat I was so ecstatic. I pulled Tate over to me and excitedly whispered, “Tate! That was sarcasm! You did it! You said something sarcastic! Good job!” I know that eventually I will probably regret these lessons in sarcasm. I know this because four of my seven children are now sarcastic, young adults who did not need my tutorials to become that way. I had a shot at mothering a child without ever having to hear those sarcastic comments that come so easily to the others, but I am a glutton for punishment because just today I said something sarcastic to Tate and then said, “Did you hear that Tate? That was sarcasm” and he smiled. 

This is another post you might enjoy about language: Who's on First?

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