I try hard to be an encourager. The world needs more
encouragers. I especially try to be positive when I am speaking to parents of
children with autism who are coming behind me. Those with kids younger than
Tate need to know that it is not all doom and gloom after the autism diagnosis.
But sometimes it is hard. I was born a pessimist. Pessimism comes naturally to
me and “looking on the bright side” is something I have to work at. Think
Winnie the Pooh’s friend Eyeore and you will have an idea of the way I often
think. I have to fight through that gray little rain cloud that is right over
my head. It’s just who I am. However I am also someone who has been able to
overcome some of that because of lessons Tate and Sydney have taught me. There
really are blessings to be found in the face of adversity.
I don’t sit around and feel sorry for myself too
often. I simply have too much to do. But yesterday... Yesterday I had a pity
party. In attendance were myself, and Tate from the future. He was with me as I
sat and cried. He was a middle-aged man and I was a bent old woman. I was still
trying to help him brush his teeth and find his shoes. I was still helping him
in all the ways a mom helps her child. Her young child. Her five-year-old
child. And he was six foot three inches tall.
My pity party began in the dentist office bright and
early Monday morning. We were there because I had “guessed” Tate had a
toothache. He cannot / will not tell me when he is in pain. He does feel pain.
I am sure of that. On Friday Tate made a few references to teeth. They were out
of place and seemed odd. But Tate has autism. Let’s face it. Much of his
conversation on any topic is odd. Saturday morning Tate texted me that I should
take his brother to the dentist to get a cavity fixed. I thought, “Oh, Tate is
trying to make a joke.” He hates dentists and he thinks he’s sort of insulting
Levi by saying something like that. It’s Tate’s way of teasing. But then there
were several more references to the dentist. By now I should have caught on. And
then Tate did something Tate VERY rarely does. When I quizzed him about all the
references to the dentist and asked him what was up. He admitted that he MIGHT
have a problem with a tooth. He asked for a Tylenol. That’s a pretty big deal
around here. First thing Monday morning I called the dental office we use and
took Tate right in. I like all the staff there. The dentist Tate normally sees
was out and we saw another. There, explaining to the dentist that my son
appeared to be a young man but she should probably try to communicate with him
like she would a five or six year old, my eyes began to leak real tears. I went
on to explain that Tate does not tell me when he is in pain so I have to guess.
As the dentist investigated to find the problem, I sat and thought. I
remembered that when each one of my children were small I had to be vigilant
and know when they were hurting based on behaviors. It’s just what good moms
do. As my children aged they could tell me when they hurt and eventually they
could take care of themselves. My four oldest children are adults. They make
their own doctor appointments and bandage their own wounds now when necessary. They
don’t call home to tell me about their minor illnesses. They don’t need me in
that way anymore. Tate is not there though. Tate will never be there. Tate will
always need me and there will come a day when I am not there. I’m 38 years
older than Tate.
My pity party was not just about Tate not growing up
on the inside as he grows taller on the outside. It was about me. When my kids
were little and they hurt, I hurt too. A mother’s empathy for her children can
cause her to hurt physically sometimes. As they aged and they were able to take
care of themselves some, my empathy for their pain was not nearly as intense as
it was when they were small. Over the weekend when I thought Tate was hurting
and he was relying on me to identify the problem and help, I hurt for him. Because
Tate is never going to grow much older on the inside and be able to mature like
his siblings did that leaves me forever stuck feeling the kind of empathy pains
for him I would have for my toddlers.
I love the thought from the Bible about everything
having a season. Probably the happiest time of my life was when my kids were
all small. But now it is time for them to grow up and for me to enjoy them as
adults. They will be giving me grandchildren in just a few years. And I will
still have an adult sized six-year-old to care for. Life’s not fair. So
yesterday I had an emotional meltdown. Several times in the afternoon I broke
down and sobbed for the Tate I will never know. The man he will never become. I
felt really sorry for myself.
Today is a new day. His sore tooth turned out to be
related to a broken wire and twisted bracket from his braces, not a cavity.
It’s fixed and his pain is gone. My worries about his pain are gone and my
spirits are lifted. Today I am not sitting with the future Tate dwelling on
what will never be. Today I dropped my sweet son off in front of his school and
as the car door closed I said, “I love you Tate.” I expected to hear, “I love
you too.” Instead I heard, “I know.” As I pulled away I smiled ear to ear,
happy that he knows he is loved.
For more about trips to the dentist, click here: Cleaning, Filling and Straightening the Teeth of Autism
(((Hugs))) - hang in there mama. I have these same fears - ALL THE TIME. My hubby is convinced our son will eventually be able to take care of himself - I'm not as convinced of that. Just found your blog yesterday and SO glad I did. How was your son when he got braces? That is another worry - my son is definitely going to need them, but the thought of them actually being able to put them on and the fear that he will be in a state of eternal meltdown over having them on has paralyzed me over it.
ReplyDeleteHe was in second grade when he had phase one. He needed them so badly as teeth were coming in behind others. I was skeptical there was an Orthodontist that could do it and skeptical Tate could handle it. I found a fantastic Orthodontist who is so kind to Tate and patient and works as slowly as Tate needs him to. His assistants are as wonderful as he is. Tate was able to tolerate much more than I thought he'd be able to. Although he could not wear the retainer without gagging and spitting it out immediately, everything else went well. Phase two had to be done when a lot more of his permanent teeth were in and we put it off until he was 13. He's doing just as well again. He does hate having them but he's a trooper. I have to do the brushing if we want them clean though. Try it because your son might surprise you. Find an Orthodontist who is good with special needs kids. Not all of them are.
DeleteI could have wrote this column. I was 38 when I had my son, he's 19 now. I have all these feelings and you are not alone.
ReplyDeleteI know the feeling well. I also worry about who will take care of my guy when I die. I hope he can get in a group home as an adult or something but I can't bear the thought of it. Or the thought that he won't be taken care of properly. I just have to give it to God.
ReplyDeleteBeautiful story, my son is 16 I so get this. :)
ReplyDeleteDeedee
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