Stims: Good, Bad or Ugly?

When Tate was diagnosed with autism, I did not know anyone else with autism. I had no idea what the right thing to do was, nor if there were any treatments. I quickly began educating myself about autism. I read many books and surrounded myself with people who could help us. We began ABA and tried our best to use “best practice” methods. Forty hours a week of discrete trial and incidental teaching, redirecting stereotypic behaviors, and teaching social skills. 

I did have the Internet, but social media was not yet a “thing” when Tate was three years old. For that I am grateful. Shocking, coming from a mommy blogger who loves nothing more than interacting with others from the autism community isn’t it? Let me explain. 

If I had turned to Facebook and mommy bloggers for my information, I'm afraid I would have done many things differently. And if I had done many things differently, Tate might still be stimming his day away and unable to do so many of the things he can now, twelve years after his diagnosis.

So many autism parents today, in the name of autism acceptance, are telling us not to try to change our children with autism. The politically correct thing has become “Don’t ask a child with autism to step into your world. You should step into his.” The thing is… mom and dad will not always be there. The child with autism is going to grow into an adult with autism. And all those things that you did not ask him to learn, and all those things he did not have to give up (because he has autism) have the potential to make his adult life so much harder. The stereotypic behaviors could make him a target for bullies. Those things you did not ask him to give up are likely going to be ingrained and a huge part of his day.

According to so many autism moms who are blogging, their children with autism NEED the stereotypic behaviors. They say the behaviors serve a purpose. Some even suggest that we should stim right along with the child. 

The sensory issues are real. I get that. I get all that. Tate NEEDED to do those things too, when he was small. But those things were getting in the way of his learning. And he NEEDED to learn. I chose the hard road. The majority of the stimming NEEDED to go. One of the hardest parts was that when one stim was eliminated, another often took its place. But we kept at it, gently trying to mold and change the way our son dealt with stress, boredom, and excitement. 

Tate wanted to run back and forth on his toes, from one end of the room to the other. I put things in his path and redirected his attention. All. Day. Long.

Tate wanted to look at his reflection in the oven door, the television, and mirrors for long periods of time. I covered the oven with a towel, the television with a fitted sheet, and took down the mirrors.

Tate wanted to use books to fan the pages for thirty minutes at a time. I made sure he stopped and looked at each page or we put the book away.

Tate wanted to wave his hands and wiggle his fingers. We gently took his hands and put things in his hands to hold and tried to keep him busy playing. 

Had Tate’s favorite stim been head banging until his forehead bled, no one would think I was a tyrant for redirecting it. Had his stim been to bite himself or others, my efforts would have been approved of as well. Would he have NEEDED those things? I drew my line way before those things though, so I have been told I am not accepting of Tate or his autism. HA! I’d step in front of a truck for my boy and I’ve worked so hard to help him. It would have been much easier to just let him stim. 

I heard from a mom recently with a son about ten years old. She had been trying to convince a therapist that her son NEEDED to stim and it was cruel to ask him to stop or to reduce the amount of stimming he engaged in. Because the therapist would not agree, the mother thought the therapist did not understand autism. It could be that the therapist understands autism better than the mother.

What if I had not redirected all the stimming when Tate was small? What if I had given up because it was so hard to do? Our lives would have been so much easier for those preschool and early elementary school years, for sure. But what about now? Tate is six foot, three inches tall. Any stimming he wants to do now, would be impossible for me to deter. He still occasionally stims, but it does not take up large parts of his day, nor does he rely heavily on it to entertain himself. His go-to stim now is pacing, which he does when he is nervous. He sometimes stiffens his body and uses his hands to push on his legs when he is bored or anxious. But those things do not consume him like his stims did when he was small. Would he have eventually outgrown it all on his own? 

I suppose he might have stopped or reduced all those stereotypic behaviors on his own. I could never prove he would not have. I was unwilling to take that chance. All those hours I redirected the stimming were not wasted either way, because every minute Tate was not stimming, he was learning. I was teaching him: how to pretend, how to read, how to interact with others, how to use verbs, pronouns and prepositions, social skills, turn taking, how to tell a joke, and so much more.

I know how hard it is to redirect stimming. The enormity of the task is intimidating. If you choose to try to eliminate the stimming, you may become discouraged at times. But, do not let the moms who are engaging in stimming with their child, in the name of autism acceptance, deter you. It may be that many of those kids will someday be six feet tall and their moms will be wishing they had eliminated or reduced some of the stimming when they were very young too. 

I didn’t “cure” Tate. I'm not making that claim. But I did help him to “fit in”. I do not understand the mind-set of so many parents in the autism community lately. Asking a kid with autism to conform is not abusive. One of my favorite quotes is the one that tells us not to judge a fish on its ability to climb a tree. But, I did not ask my fish to climb a tree. I asked my fish to swim faster, harder, and be a stronger fish, something that would be politically correct for a typically developing child, but not for a child with autism these days. And yet, we autism parents are often asking the world to treat our kids as they would treat any others. 

Perhaps there is no true right or wrong answer about the stimming. Or perhaps we will not know until this group of children who are encouraged to stim have grown into adults. Perhaps these children will be far better off and healthier than my son who was constantly asked not to stim, or to choose a more subtle stim at times verses an obvious one. Perhaps there will be no difference at all. 

More Texts from Tate

My readers keep asking for more texts from Tate and Tate keeps providing them. So I will share some more of the best of the best. And if you need to catch up then follow these links to past texts from Tate: Breaking Bad News and Tate's Texts

Tate sometimes makes grandiose plans that would be impossible to carry out. I am sure he himself is even aware that many of his schemes are just for fun. Almost always they are linked to a movie or television show he has seen. He loves to plan. Occasionally he becomes upset if we do not take him seriously enough but most of the time he is happy for us to just play along a little, even knowing his plans are only fantasies. 

Tate recently became interested in my blog Quirks and Chaos. He doesn’t really read it although he knows where to find it on the web. He likes looking at the pictures. He also likes that he is on the web. Although when I have teased him saying he is famous he says, “Mom. I haven’t even been on television.” He decided he wants to surprise me by making a commercial for Quirks and Chaos. He has enlisted the help of his siblings. He’s been texting them individually and in groups with ideas. He let me in on a bit of it and revealed to me he would like the commercial to air on ABC Family. And apparently his siblings need to learn some dance moves for their part in the commercial.

Tate's sister Bailey is in blue in this text. Tate and his siblings are in gray, although Tate does MOST of the talking here. Notice he even says, "I will ask the questions." That is definitely a movie line. 

 

 

Lately Tate has had an obsession with Black Friday and he wants to plan our day, months in advance. He wants active participation from all six of his siblings. Tate’s siblings enjoy his planning and texting, probably as much as Tate does himself.

Nebraska Furniture Mart is a favorite of Tate's. They have dvds and lots of technology there. 

Why I Blog

I blog about my special kids. I blog about autism and FAS because I want to educate others. Educating others will make all the difference in how my kids and others are treated in this world. I blog for Tate and Sydney.

I blog to share my experiences with others. I blog because parents need to know that drinking alcohol while pregnant will do irreversible damage to their unborn baby. I blog because adoptive mothers need to know just how hard parenting a child with no impulse control is going to be. I blog because autism is now being diagnosed at a rate of 1 in 66 and many of my readers will be touched by someone with autism, if they are not already. Sometimes my blog posts are encouraging to others but sometimes they are not. I blog for others.

I blog because it is good therapy for me. I have blogged about the disappointments we have encountered, the challenges we have faced, the people who have helped us, and the few who have hurt us. I have blogged about victories and failures, the hard work and the rewards. Sometimes when I blog I am sad, but usually when I blog I am not. I blog for me.

Although much of my audience has never met me, they are getting an intimate look into my life. I wish I knew them better. I would love some feedback, some comments after the posts. With almost 100 posts up now I should be getting a feel for what gets read and shared and what does not, but I am still surprised sometimes which blogs get hundreds of views and which ones only get dozens. I know my kids, siblings, and even cousins are reading. As long as my large family is reading I can always count on at least two-dozen views. HA. I know some of my readers are teachers. A few tell me they are reading and learning. Two of my teacher friends have told me they have learned more from my blog than they have from any other source. That makes me happy on one hand, but sad on another. Of all the people in this world that need to be very well educated about autism, it is our kids’ teachers. They should get a lot better education about their “special” charges and their needs than one mom’s view. It is one in 66 now, folks! Everyone needs to know what autism is in this day and age.

Some of my most-read posts are the ones I write about personal tragedies, not the ones about autism or FAS. The post about my miscarriage, one about the things I regret, and the one I wrote recently when I was filled with angst over my inability to influence someone I love were some of my most popular posts.* Why is that? Why do we all love a train wreck? Why do we all want to read of someone else’s sorrow or regret? Maybe it is so we can exercise those empathy skills that we would not have if we had been born with autism! And, it may be that when we read of others’ trials we can count our own blessings.

If my purpose in writing each post is not to educate or edify, does that mean I should not have written it? Must a Christian ONLY write or speak of things that will encourage others? Must we leave out the heart-rending stories that do not have happy endings? Must we never talk of our past disappointments or our anger? Have I hurt my influence with my writings? I think I know the answers but recently these questions were planted in my mind by a reader.

I realize when I “bare my soul” and share my thoughts in a public way I am opening myself up to criticism. I realize that I have a huge responsibility as a Christian not to hurt my influence. I also realize that I need a thicker shell if I am going to continue to blog. It is a good thing that I have a whole lot more encouragers than I do critics. I have read (and I believe it is true) that for every put-down we hear, we need ten compliments to undo the hurt from the one criticism. “Be careful little mouths what you say” as I used to sing to my children.

One of my favorite gospel preachers once said we can judge people’s actions but we had better not judge their motives. We cannot see a man’s heart or know his motives. Only God can. Sometimes people judge me by the words I write. I cannot fault them. I wrote the words and invited those people to read them. But, when people try to see behind the words and imagine that my words are not sincere or that my heart is bitter, can it be that my heart is not the one that needs examined? For the record: I do believe that we can judge others. A favorite quote of non-Christians is that we should not judge others based on John 7:24 but they never want to finish the verse which says we must judge others with RIGHT judgment. You will find the same idea in Matthew 7:1-5 and it finishes with the idea that pulling splinters out of an eye is hard to do if your own eye contains them. I’ll step off the soapbox here.

I will continue to blog: for Tate and Sydney, for others, and for me. From time-to-time I may have someone question my motives or even my sanity. My motives are pure and my sanity…. Well, I have as much as I ever did. 

*links to posts mentioned: Loving Chaney, Regrets, Sometimes There Is Nothing I Can Do

Next up: Why I don’t usually get excited about those autism feel-good stories I see in the news.