As
soon as I discovered that Tate had autism, I began researching
treatments. There are so many ideas out there. I wanted to find a
treatment that was proven to have results. I wanted a “cure” for
autism. I read the book "Let Me Hear Your Voice" by Catherine
Maurice. In her book she told of the huge differences between her children
before and after the therapy she provided. I wanted recovery for Tate! The
only research based treatment I found was called Applied Behavior Analysis
(ABA) therapy. This was the same therapy that Maurice had talked about in
her book. The initial research was done by Dr. Ivar Lovaas and published
in 1987. Lovaas had made great gains with the children he had worked
with. “Best practice” was 25-40 hours a week of discrete trial. Discrete
trials are well-defined tasks with a beginning and end. Big tasks are
broken down into small steps and are taught systematically. The end goal
might be for a child to be able to recognize and match shapes, but it would be
broken down into very small pieces. It might start with the child holding
a card that had a black circle on a white background. The teacher would
give very simple instructions, often just one word like “match.” The child
would need to match the card he was holding to a card in front of
him. There might be only two cards in front of him at first: one with a
square on it and one with the circle that matched. When he mastered that
task, a third card would be added to the table, then a forth card, making the
task harder. When the child was able to match the circle correctly after
five consecutive trials, the task might switch to matching squares. After
all the shapes had been mastered, the teacher might introduce matching a blue
square to a red square, showing the child that shapes were still shapes, no
matter what the color. After switching colors and mastering several shapes
in a variety of colors, we might try having the child match a three-dimensional
shape, like a square block, to the card with the square or a ball to the card
with a circle. There would be many small steps mastered so that the child
with autism could see the much bigger picture. All these kinds of things
are learned by the typically developing child during his regular play. It
doesn’t take hours of sitting with a teacher to learn simple
concepts. This discrete trial method of teaching is how Tate learned
almost everything. It took many hours and it was tedious. The end
results were worth every minute we spent doing these discrete trials.
In
my constant search for ways to help Tate, I read of many therapies that did not
have research to back them up. I read about diets, vitamins, use of steroids,
holding therapy, animal-based therapies, music therapy, and several other
things. I was willing to try almost anything to help Tate, but nothing had
research results behind it except the ABA. I do believe some of the other
things help some kids. Swimming with dolphins would be a dream for a lot
of kids and it might even help a child with autism in some ways but it is not a
valid therapy in my mind. Music therapy would be very valuable to the
child that likes music as well. I know it would not have gotten the
results we got with ABA and discrete trial though.
I
have had a few people try to convince me to take Tate off milk and
wheat. There are about a dozen foods Tate will eat. If I took him off
milk and wheat then there would be almost nothing left for him to eat. I
know Tate well enough to know he would probably go for days without eating
before I gave in and let him have his crackers, bread and milk back. If I
really thought the diet would “cure” Tate’s autism then I’d throw out every
last cracker and piece of bread in the house. The kids that I know on the
diets, still have autism, most of them are lower functioning than
Tate. They feel better on the diets and Tate probably would too. If you
feel better then you behave better and can learn better, I am
sure. I just do not think the benefits, if any, would outweigh the
difficulty in our home. There are few studies I've seen and no real research to
back up the diet therapies that I've seen.
When
Tate was waiting to be diagnosed by a professional, I sent out a letter to our
relatives and some close friends. We didn’t want to make dozens of phone
calls, answering all the same questions over and over. I explained what we
were going through. We had already decided we would be jumping into ABA
therapy with both feet. I asked my friends and family to support us in our
decision and not to buy into all the theories about “cures” they would hear
about. There were no cures and only one research based therapy we were
going to use. Immediately, I started hearing back from people with the
suggestions I had specifically asked them not to give me. I heard: Tate needed
to be going to a chiropractor, begin homeopathic treatments, use vitamins, take
him off milk, and sign him up for horse-back riding lessons. Lots of
people were just sure the government gave grants and all kinds of money to
parents to help kids with autism too.
I
am very happy with the outcome of the early intervention program we provided
for Tate. I am confident he benefitted a lot from the things we
did. I don’t think I will ever look back and say I should have done
anything differently. Had I hoped for a complete “recovery” from
autism? Yes. Is it realistic to hope for such a thing? Probably not. Did
God answer my prayers for Tate? Absolutely!
Also by this author: "15 Truths of Parenting Special Needs Kids."
Find me on Facebook at Quirks and Chaos. Like what you read? Want to become a follower? Click on the Google Friend Following gadget on this blog. It's over on the right side and asks you to subscribe. Or you can add the URL (the web address in your search bar) to your Reading List. You can do that by clicking the plus sign in front of the URL. Thanks!
You did so much research and you chose the best method for Tate. You have reaped the best possible results. I hope your blog will reach many who may be helped by all your work.
ReplyDeleteYou made an amazing choice - and I believe the right one, in your shoes, it's the exact thing I would have done. I think unestablished 'cures' can do more harm than good, just establishing an endless cycle of hope and disappointment and a very unstable and ever-changing environment for the child - not helpful for someone autistic! I'm so glad you're reaping the rewards - it's very clear in your Pictionary post how far Tate has come. Did you need to do similar therapy with Sydney?
ReplyDeleteThanks Liz. We did do a lot of the same things with Sydney, although not as intensely. She has similar needs in many areas yet is so very different than Tate. Her social skills are better than his. Tate is a sensory avoider and Sydney is a sensory seeker. Tate could sit still for long periods of time and Sydney could not. Until we began medications for Sydney's concentration and hyperactivity she was not able to sit and learn much. They went to the same preschool program and had many of the same teachers and I had all of the material I had used with our ABA program for Tate so I tried to use a lot of it for Sydney.
Delete